Juan Jose (my son’s name) unfortunate diagnosis:
My wife and I first noticed a problem with our son 1 year ago (when he was 4 months old). We were at a family wedding during the storm season when a strong thunder happened. Strangely, my son didn’t react to it while everyone was scared. The same week, strong winds slammed the door shut in the room where he slept. To our surprise, again he didn’t react.
We consulted with a pediatrician who referred us to a specialist to test for Auditory Evoked Potential. But by that time, the Covid lockdown started in our country and we couldn’t schedule for the test until 5 months later. We had no idea how much precious time was lost.
The 2 main specialists for hearing impairment are Otoneurologist (few neurologists subspecialize in otoneurology around the world) and Phono Neurologist. (I will confirm the exact title soon.) In Honduras, the real specialist is from the United States. He always needs to travel to assist the in-process learning Honduran surgeon, located in Tegucigalpa, Francisco Morazan.
By the time we were able to test, my son’s diagnosis came back as Bilateral Profound Sensorineural Hearing Loss.
What is Bilateral Profound Sensorineural Hearing Loss?
- Bilateral meaning both ears.
- Profound meaning deaf.
- Sensorineural Hearing Loss is permanent. (It means the nerve connecting to the brain is not working, and is usually treated with implant acting as the replacement for the nerve.)
With either definition, if you have profound hearing loss, you won’t hear most everyday sounds without amplification, just loud sounds. You might catch a 100-decibel ambulance siren if your car window is open—but not someone calling you from behind.
Profound hearing loss usually stems from a birth defect or an illness or injury, not from age. Many people in this group read lips or use sign language as they cannot typically hear speech. However, people with severe or profound hearing loss can still benefit from hearing aids.
– Healthy Hearing (https://www.healthyhearing.com)
In JJ’s case, he doesn’t hear anything. His brain barely received any sound even above 95 decibels!
Testing for implants or hearing aids.
While the diagnosis is the worst that any parent could ever receive for their child, we wanted to find the best help that we could. The otolaryngologist instructed us to make more tests (blood test, magnetic resonance and CT in the ears) and see if he would need implants or just hearing aids. In this process, we consulted with every specialist we could find. We searched all over our country of Honduras to learn there was only 1 specialist of this level. During this time…my wife and I considered even to make visas to visit other countries and consult different specialists. Hoping maybe…someone might have a different opinion for us. But it is impossible with this Covid lockdown.
The last appointment was made on December 1, 2020. The diagnosis was final. My son needs Cochlear implants in both ears. The cost of the implants is $63.2k (31.6k each) plus $12k for hospitalization, medical fees and surgery costs. (See official document – Our country primary language is Spanish. I’m going to translate it to English in the coming days).
Why the Cochlear implant surgery has to be done now.
My son needs to be implanted as soon as possible to reduce the gap of his loss of motor skills. The specialists recommend to make the surgery no later than 2 years old and maximum 3 years. He is 1.5 years old (as of December, 2020). My wife and I are trying to save as much money as we can but it’s been very challenging.
On behalf of my little family
We thank you wholeheartedly for hearing out this story. It’s a strange place for us to be. But today and hopefully never again…we ask for your help and support. This is your chance to be our hero.
Thank you and best of wishes to you.
How you can help
No amount too big or small. Anything helps. Anything is appreciated and we really mean that. $1, $5, $20, $100. Any little bit helps. Offline donations, please use the contact form.
Thoughts & Prayers
Don’t have extra funds? We know…it’s been a crazy Corona year for everyone. Kind words, hugs, thoughts & prayers are appreciated just as much. Please share with your social circle.
While Walter is in limited capacity for the oncoming months, he can be booked for future work. He does custom development and also offers website maintenance packages.
Frequently Asked Questions
Is this donation tax-deductible?
No, this is not a non-profit org. It’s a person from the community who needs help now.
How much of the donations go to Walter?
Other than transaction fees (~5%), Walter receives all of it.
Why didn’t we use GoFundMe?
GoFundMe (along with other crowdfunding platforms) do not support the country of Honduras.
Special thanks to our donors. Please checkout their businesses; many of them are top WP developers/contributors.
Matthew & Becky Bailey
Our daughter received cochlear implants almost 2 years ago and it has changed her world for the better. I know it seems dark and difficult… Read more
Our daughter received cochlear implants almost 2 years ago and it has changed her world for the better. I know it seems dark and difficult right now, and I can’t promise those feeling won’t come up from time to time but once JJ gets his magic ears and you see him thrive, you’ll feel more pride and joy than grief. I promise it gets better. Sending our best wishes as you start this journey. Keep going. He’ll surprise you in the best ways.
Praying for you guys!
Karlyn Tejada Brolsma
Thinking of your fam!
Hi Walter! I just saw this!! My prayers are with you during this time.. I know this surgery would be a big help!
May the little one get the care he needs!
Dr. Antonio G. Farruggia-Bochnak
Dyslexic Brain Coach
Keep on going with the fundraising Walter – I am praying with all of my heart that you hit your target. Please send my love to JJ 🙂
Dr. Antonio G. Farruggia-Bochnak
Dyslexic Brain Coach
Walter, you and your wife are such wonderful people and I'm so proud to be connected with you through work. Give my love to JJ 🙂
I will pray that your son gets the help he needs!
Prayers from Texas
I will be praying for your son and your fam!
I pray your child gets well soon and is healthy forever
best to you all 🙏🏻
Milan de Keijzer
Wishing your family all the best!
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Everything will be fine
Get well soon lil guy!
Remkus de Vries
Best of luck!!
You and your family are in our thoughts and prayers!
Sunny & Clear
Best of luck to your whole family
Hang in there. Dawn will come. 🙂
I will keep you and your son in my prayers.
Sending positive vibes ❤️
Wellspring Web Studio
We haven't met, but prayers and rooting for you and your family.
Praying for your son
Best wishes for JJ!
Sending love and prayers! All the best for JJ!
Thinking of your family!